Assessment of quality of life among caregivers of persons with permanent disabilities attending rehabilitation centre in H. D. Kote Taluq, Mysore district, Karnataka, India

Prakash Boralingiah, Arun Baby, Praveen Kulkarni, Seetharam M. Ramachandrappa, Renuka Manjunath


Background: Quality of life (QoL) is defined as “an individual’s perception of their position in life in the cultural context and in the value systems in which they live and in relation to their goals, expectations, concerns and desires. Caregivers of persons with chronic health conditions run the risk of emotional distress and poor adjustment to the demands of the patient, which in turn may adversely affect the quality of care that a person in need would receive. An assessment of quality of life among caregivers is important, for interventions targeted at rehabilitation.

Methods: A 100 caregivers of persons with disability registered under the rehabilitation program of SVYM at VMH Saragur were selected for the study. WHOQOL-BREF questionnaire was used to assess quality of life of caregivers.

Results: The Mean age of the caregivers was found to be 38.25 years with 87 (87%) females and 13 (13%) males. The mean Quality of Life of these caregivers was 71.97. Physical domain was significantly associated with income, earning capacity and duration of care. Psychological domain was associated with income and family type. Social domain was the most affected, with factors viz. Age (p-value=0.002), employment (p-value=0.02), earning capacity (p-value=0.032), education and duration of care being significantly associated. Environmental domain was associated with relation to caregiver, earning capacity (p-value=0.032), education and income. Marital status was observed to affect all the domains.

Conclusions: The Quality of Life of Caregivers was significantly affected by a multitude of factors which need to be addressed to ensure proper care of their wards. Interventions aimed at building the capacities the affected individuals as well as the caregivers would be highly beneficial to both groups.


Caregivers, WHOQOL-BREF questionnaire and quality of life

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World Health Organization. Document A29/INFDOCI/1, Geneva, World Health Organization. 1976.

National Sample Survey Organization. Disabled Persons in India: NSS 58th Round. Report `No. 485. New Delhi: Ministry of Statistics and Program Implementation, Government of India. 2002.

WHO. Meeting Report on the development of guidelines for Community Based Rehabilitation (CBR) programmers. (1st and 2nd November 2004, Geneva, Switzerland); Final Draft. 2005.

The WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL): position paper from World Health Organization. Soc. sci. med. 1995;41:1403.

Lima ML. Quality of life of individuals with stroke and their caregivers in a city of Triângulo Mineiro. Rev B ras Epidemiol a Pr –jun. 2014;453-64.

Schestatsky P. Quality of life in a Brazilian sample of patients with Parkinson’s disease and their caregivers. Rev Bras Psiquiatr. 2006;28(3):209-11.

Awadalla AW, Ohaeri JU, Gholoum A, Khalid AO, Hamad HMA, Jacob A. Factors associated with quality of life of outpatients with breast cancer and gynecologic cancers and their family caregivers: a controlled study. BMC Cancer. 2007;7:102.

Mugno D, Ruta L, D'Arrigo VG, Mazzone L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes. 2007;5:22.

Alshubaili AF, Ohaeri JU, Awadalla AW, Mabrouk AA. Family caregiver quality of life in multiple sclerosis among Kuwaitis: A controlled study. BMC Health Services Research. 2008;8:206.

Logsdon RG, Gibbons LE, McCurry SM, Teri L. Journal of Mental Health and Aging. 1999;5(1).

Wong DFK, Lam AYK, Chan SK, Chan SF. Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health and Quality of Life Outcomes. 2012;10:15.

ZamZam. Schizophrenia in Malaysian families: A study on factors associated with quality of life of primary family caregivers. International Journal of Mental Health Systems. 2011;5:16.

Tew EH, Naismith SL, Pereira M, Lewis SJG. Quality of Life in Parkinson’s disease Caregivers: The Contribution of Personality Traits. BioMed Research International Volume. Article ID 151872. 2013.

Grover S, Dutt A. Perceived burden and quality of life of caregivers in obsessive–compulsive disorder. Psychiatry and Clinical Neurosciences. 2011;65:416-22.